Posts Tagged With: Tantrums

The world of SPD never goes away

I’ve been posting a little bit about how the juggle of returning to work part-time was quite an adjustment for our family….

Initially, this mostly revolved around trying to accommodate drop-offs & picks-ups amongst terrible local traffic & a husband who has a completely irregular & all-consuming schedule in the land of our own start-up versus my not-an-inch-of-flexibility work schedule.

But as the weeks past, & we got more into the swing of a new routine, we realized there was another side effect to me working that we did not anticipate. Nor, did we manage very well.

As it turns out, my return to work, albeit part-time, did nothing but exacerbate Mylo’s struggles & SPD (Sensory Processing Disorder) symptoms. I began working again sometime around April this year & now that October is approaching, Mylo is finally finding a place where he can cope a little easier with life.

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Once I returned to work & when summer vacation & the absence of school hit, poor Mylo just turned into a big ball of distress & frustration. Seeing him now much happier & more able to self regulate on occasion, has made any qualms I had about being at home, disappear in an instant.

Mylo is so much more secure & stable when I am home & that in itself is a huge blessing to witness as a parent.

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Anyone who has a kid struggling with SPD will attest to the fact that it takes many different shapes & can vary in degree. And just when you think you’ve got a strategy down… a new issue arises or an old one takes a new spin.

For Mylo, we’ve always struggled with shoes – over summer it could take us 40 minutes of massaging his feet & trying many different socks to find a way to leave the house without pain in his feet. And to his credit, he tries so hard to make himself comfortable, he really does (which in itself is naturally heartbreaking).

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He also suffers from a sound & smell sensitivity limiting our surroundings at times. So once out, he often wants to immediately return home.

He is easily overstimulated when his little body can no longer process the sensory input he cannot avoid and this tends to manifest in tantrums & bouts of rage where everyone around him can suffer. Socially inappropriate & the flying judgments are painful.

Another result of this, if Mylo isn’t consumed by frustration & rage, is a high. He can become so high in his behavior that trying to communicate becomes almost impossible. Sometimes he’ll fall asleep in the moment. But sometimes not.

Reasoning & trying to communicate logically is becoming more a part of routine as kids approach 5. They may not agree, or like the way things are, but unlike with a 2 or 3-year-old, they can form a much greater understanding & thus acceptance of circumstances & reason out a means of coping. Mostly.

Mylo though has delayed development & interacting with him currently, requires the recognition that he is more often than not, needing a 3 1/2-4 year old level of communication as opposed to a 5-year-old. But as he is very tall, no one else gets this fact.

There are many more issues that affect Mylo, resulting from SPD but for the most part whilst I was working, getting through the day was actually a challenge for all of us. Both Kevin & I had to constantly check our patience & empathy; I needed time out I wasn’t able to get & Ethan, the big brother, really has to adopt a much more mature stance in that living with Mylo requires flexibility, understanding & acceptance not usually required of a 6-7 year old. He is a trooper that kid. One I am so proud & also inspired by.

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Currently though, I’m pleased to say, we are all truly enjoying the here & now. It is like taking a deep, satisfying breath, as Mylo comes down a few levels of intensity post summer. He has always been the most personable, quirky & popular kid I’ve known. You cannot do anything but adore Mylo.

Back in OT, back in school & me being available for drop offs, pick ups, sick days & everything in between – means we can enjoy those parts of Mylo more & more often. And that is making our family unit, much more, a family unit.

We are coming back together again rather than feeling like we are splintered apart & barely holding on.

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Categories: Bigger Issues, Family Life, Life as it is, Mummyhood | Tags: , , , , | 2 Comments

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